We are in the midst of battling her first go round with pouchitis. Bad stomach pain at the beginning but once I got her to the hospital and on the antibiotics, she did a complete turn around fairly quickly! Just a few more days left on her meds, and she is good to go. Hopefully we don't encounter it again for a looong long time!
I will leave you all with an updated picture. Look how good she looks! To all of you parents out there who think getting a colectomy is the end of the world: its not. Alexis was so sick and the j-pouch has seriously given her life back!
I'm so glad to hear your angel is doing better! You have my best wishes for continued health.
ReplyDeleteI wrote the following before I knew that she was already better, but will post anyway in case it helps someone somewhere:
I have an autoimmune disorder known as Ankylosing Spondylitis. My condition includes joint pain, and there are associated conditions with bowel disturbances. Speaking only from personal experience I know that a change of diet helped reduce my symptoms to far less than a tenth of what they were. Now I won't tell you it will work for her, I don't know that, and I won't be so arrogant as to say that. But I would feel bad if I didn't let you know about it.. the diet I use is a bit hard to follow (it is called the NSD), however there is a similar one that will be easier to follow called the "Paleo Diet".
I would recommend a probiotic that has as many strains of good bacteria as you can find, these are often marketed under the silly name of "Soil Based Organisms" (but I think that is just some weird marketing thing). A good one has 12 or more strains.. we are trying to repair an ecosystem, and bombarding it with a monoculture won't do this.
PS: I would like to add that Kefir yoghurt is an ancient healer, maybe try making your own :)
Take care,
Z